Search Results for: care.data

Articles on care.data

I thought I was rather flogging the care.data horse on this blog, so, in the spirit of persistence, I thought why not go and do it somewhere else? The Society of Computers and Law kindly asked me to write a broadly “anti” … Continue reading

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Opting patients out of care.data – in breach of data protection law?

The ICO appear to think that GPs who opt patients out of care.data without informing them would be breaching the Data Protection Act.  They say it would be unfair processing In February of this year GP Dr Gordon Gancz was … Continue reading

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Big Pharma and care.data

Patients’ identifiable medical data will end up in the hands of large pharmaceutical companies, under the care.data initiative. With “Big Pharma” beholden to shareholders, and its abysmal record on transparency, is this another reason to consider opting out? We are … Continue reading

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The care.data leaflet campaign – legally necessary?

Readers of this blog [sometimes I imagine them1] may well be fed up with posts about care.data (see here, here and here). But this is my blog and I’ll cry if I want to. So… Doyen of information rights bloggers, Tim … Continue reading

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Filed under care.data, Confidentiality, Data Protection, data sharing, Europe, human rights, Information Commissioner, NHS, Privacy

care.data – what am I worried will happen?

I was invited today on twitter to say what I was worried will happen as a result of the care.data programme. I’ve written about this previously, and some of my concerns are laid out in those posts. But here’s a little … Continue reading

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Why I’ve opted-out of care.data

Last week, after months of (over)thinking about it, I sent my GP a letter, based on the excellent template by the tireless MedConfidential refusing consent for identifiable data from my electronic medical records to be transferred to the Health and Social Care Information Centre (HSCIC). … Continue reading

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Hospital episode data – confidential data uploaded by mistake

Rather hidden away in the new IIGOP annual report is a worrying and revealing report of a serious data breach involving hospital episode data In February last year Tim Kelsey, NHS England’s National Director for Patients and Information, and vocal … Continue reading

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The Partridge Review reveals apparently huge data protection breaches

Does the Partridge Review of NHS transfers of hospital episode patient data point towards one of the biggest DPA breaches ever? In February this year Tim Kelsey, NHS England’s National Director for Patients and Information, and vocal cheerleader for the … Continue reading

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Filed under care.data, Confidentiality, Data Protection, data sharing, Information Commissioner, monetary penalty notice, NHS, Privacy

We thought you cared(ata)

David Evans is Senior Policy Officer at the Information Commissioner’s Office (ICO). In an interview with “The Information Daily.com” uploaded on 12 March, he spoke about data sharing in general, and specifically about care.data (elsewhere on this blog passim). There’s … Continue reading

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Health data breaches – missing the point?

Breaches of the DPA are not always about data security. I’m not sure NHS England have grasped this. Worse, I’m not sure the ICO understands public concern about what is happening with confidential medical information. They both need to listen. … Continue reading

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Filed under care.data, Data Protection, data sharing, Information Commissioner, NHS