Tag Archives: privacy

Right now, you are being monitored

This morning, as I was leaving the house for work, I wanted to check the weather forecast so started tapping and swiping away at my newish iPhone to find the weather screen. I was startled to see some text appear which said

Right now, it would take you about 11 minutes to drive to [workplace address]

(It looked a bit like this (not my phone I stress)).

It was correct, it would indeed take me about that long to drive to work at that time, but I was genuinely taken aback. After a bit of research I see that this was a new feature in iOS7, (and, indeed, the weather widget was lost at the same time). Sure enough, I find that my new phone has been logging frequently visited locations, but must have also been logging the fact that I travel between A (home) and B (work) frequently. It is described by Apple as being a way to

Allow your iPhone to learn places you frequently visit in order to provide useful location-related information

I’m not going to argue whether this is a useful service or not, or even whether on general principles it is concerning or not. What I am going to say is that, because I’ve not had much time recently to sit down and learn about my new phone, to customise it in the most privacy-friendly way, I’ve been saddled with a default setting which has captured an extraordinarily accurate dataset about my travel habits without my knowledge. And yes, I know that tracking is a prerequisite of mobile phone functionality, but I would just rather it was, as default, limited to the bare minimum. 

p.s. to turn off this default setting, navigate to Settings/Privacy/Location Services [scroll to very bottom]/System Services/Frequent Locations and set to “off”

 

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Filed under Data Protection, interception, Privacy, surveillance, tracking

Data Protection for Baddies

Should Chris Packham’s admirable attempts to expose the cruelties of hunting in Malta be restrained by data protection law? And who is protected by the data protection exemption for journalism?

I tend sometimes to lack conviction, but one thing I am pretty clear about is that I am not on the side of people who indiscriminately shoot millions of birds, and whose spokesman tries to attack someone by mocking their well-documented mental health problems. So, when I hear that the FNKF, the Maltese “Federation for Hunting and Conservation” has

presented a judicial protest against the [Maltese] Commissioner of Police and the Commissioner for Data Protection, for allegedly not intervening in “contemplated” or possible breaches of privacy rules

with the claim being that they have failed to take action to prevent

BBC Springwatch presenter Chris Packham [from] violating hunters’ privacy by “planning to enter hunters’ private property” and by posting his video documentary on YouTube, which would involve filming them without their consent

My first thought is that this is an outrageous attempt to manipulate European privacy and data protection laws to try to prevent legitimate scruting of activities which sections of society find offensive and unacceptable. It’s my first thought, and my lasting one, but it does throw some interesting light on how such laws can potentially be used to advance or support causes which might not be morally or ethically attractive. (Thus it was that, in 2009, a former BNP member was prosecuted under section 55 the UK Data Protection Act 1998 (DPA 1998) for publishing a list of party members on the internet. Those members, however reprehensible their views or actions, had had their sensitive personal data unlawfully processed, and attracted the protection of the DPA (although the derisory £200 fine the offender received barely served as a deterrent)).

I do not profess to being an expert in Maltese Data Protection law, but, as a member state of the European Union, Malta was obliged to implement Directive EC/95/46 on the Protection of Individuals with regard to the Processing of Personal Data (which it did in its Data Protection Act of 2001). The Directive is the bedrock of all European data protection law, generally containing minimum standards which member states must implement in domestic law, but often allowing them to legislate beyond those minimum standards.

It may well be that the activities of Chris Packham et al do engage Maltese data protection law. In fact, if, for instance, film footage or other information which identifies individuals is recorded and broadcast in other countries in the European Union, it would be likely to constitute an act of “processing” under Article 2(b) of the Directive which would engage data protection law in whichever member state it was processed.

Data protection law at European level has a scope whose potential breadth has been described as “breath-taking”. “Personal data” is “any information relating to an identified or identifiable natural person” (that is “one who can be identified, directly or indirectly, in particular by reference to an identification number or to one or more factors specific to his physical, physiological, mental, economic, cultural or social identity”), and “processing” encompasses “any operation or set of operations which is performed upon personal data, whether or not by automatic means, such as collection, recording, organization, storage, adaptation or alteration, retrieval, consultation, use, disclosure by transmission, dissemination or otherwise making available, alignment or combination, blocking, erasure or destruction”.

However, the broad scope does not necessarily means broad prohibitions on activities involving processing. Personal data must be processed “fairly and lawfully”, and can (broadly) be processed without the data subject’s consent in circumstances where there is a legal obligation to do so, or where it is necessary in the public interest, or necessary where the legitimate interests of the person processing it, or of a third party, outweigh the interests for fundamental rights and freedoms of the data subject. These legitimising conditions are implemented into the Maltese Data Protection Act 2001 (at section 9), so it can be seen that the FKNF’s claim that Packham requires the hunters’ consent to film might not have legs.

Moreover, Article 9 of the Directive, transposed in part at section 6 of the 2001 Maltese Act, provides for an exemption to most of the general data protection obligations where the processing is for journalistic purposes, which almost certainly be engaged for Packham’s activities. Whether, however, any other Maltese laws might apply is, I’m afraid, well outside my area of knowledge.

But what about activists who might not normally operate under the banner of “journalism”? What if Packham were, rather than a BBC journalist/presenter, “only” a naturalist? Would he be able to claim the journalistic data protection exemption?

Some of these sorts of issues are currently edging towards trial in litigation brought in the UK, under the DPA 1998, by a mining corporation (or, in its own words, a “diversified natural resources business”), BSG Resources, against Global Witness, an NGO one of whose stated goals is to “expose the corrupt exploitation of natural resources and international trade systems”. BSGR’s claims are several, but are all made under the DPA 1998, and derive from the fact they have sought to make subject access requests to Global Witness to know what personal data of the BSGR claimants is being processed, for what purposes and to whom it is being or may be disclosed. Notably, BSGR have chosen to upload their grounds of claim for all to see. For more background on this see the ever-excellent Panopticon blog, and this article in The Economist.

This strikes me as a potentially hugely significant case, firstly because it illustrates how data protection is increasingly being used to litigate matters more traditionally seen as being in the area of defamation law, or the tort of misuse of private information, but secondly because it goes to the heart of questions about what journalism is, who journalists are and what legal protection (and obligations) those who don’t fit the traditional model/definition of journalism have or can claim.

I plan to blog in more detail on this case in due course, but for the time being I want to make an observation. Those who know me will not have too much trouble guessing on whose side my sympathies would tend to fall in the BSGR/Global Witness litigation, but I am not so sure how I would feel about extending journalism privileges to, say, an extremist group who were researching the activities of their opponents with a view to publishing those opponents’ (sensitive) personal data on the internet. If society wishes to extend the scope of protection traditionally afforded to journalists to political activists, or citizen bloggers, or tweeters, it needs to be very careful that it understands the implications of doing so. Freedom of expression and privacy rights coexist in a complex relationship, which ideally should be an evenly balanced one. Restricting the scope of data protection law, by extending the scope of the exemption for journalistic activities, could upset that balance.

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Filed under Data Protection, Europe, human rights, journalism, Privacy, Uncategorized

A balanced view on Optic Nerve

As I’m keen always to take a balanced view of important privacy issues, and not descend into the sort of paranoid raving which always defines, say, the state as the enemy, capable of almost anything, I sometimes think I end up being a bit naive, or at least having naive moments.

So, when outgoing Chair of Ofcom Dame Colette Bowe recently gave evidence to the House of Lords Select Committee on Communications, and said about consumers that

their smart TV may well have a camera and a microphone embedded in it there in their living room. What is that smart TV doing? Do people realise that this is a two-way street?

I thought for a moment “Oh come on, don’t be so scaremongering”. Sure, we saw the stories about Smart TVs and cookies, which is certainly an important privacy issue, but the idea that someone would use your TV to spy on you…?!

And then, of course, I quickly remembered – with a feeling of nausea – that that is exactly the sort of thing that GCHQ are alleged to have done, by jumping on the unencrypted web cam streams of Yahoo users, as part of the Optic Nerve program. And each time I remember this, it makes me want to scream “THEY WERE INDISCRIMINATELY SPYING ON PEOPLE…IN THEIR HOMES, IN THEIR BEDROOMS, FOR ****’S SAKE!”

And they were doing it just because they could. Because they’d notice a way – a vulnerability – and taken advantage of it to slurp masses of intensely private data, just in case it might prove useful in the future.

The intrusion, the prurience, the violation do indeed make me feel like raving against the state and its agents who, either through direct approval, or tacit acceptance, or negligence, allowed this to happen. Although *balance alert* GCHQ do, of course, assure us that “GCHQ insists all of its activities are necessary, proportionate, and in accordance with UK law”. So that’s OK. And yes, they really did call it “proportionate”. 

I know the web cam grabbing was by no means the only such intrusion, but for me it exemplifies the “something” which went wrong, at some point, which led to this. I don’t know what that something was, or even how to fix it, and I’ve never used a web cam, so have no direct interest, but I will closely watch the progress of Simon Davies’ request for the Attorney General to refer the matter to the police.

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Filed under Confidentiality, Data Protection, human rights, interception, Privacy, RIPA, surveillance

Hospital records sold to insurance companies – in breach of the Data Protection Act?

I’ve asked the ICO to assess whether the sale of millions of health records to insurance companies so that they could “refine” their premiums was compliant with the law

I’m about to disclose some sensitive personal data: I have been to hospital a few times over recent years…along with 47 million other people, whose records from these visits, according to reports in the media, were sold to an actuarial society for insurance premium purposes. The Telegraph reports

a report by a major UK insurance society discloses that it was able to obtain 13 years of hospital data – covering 47 million patients – in order to help companies “refine” their premiums.

As a result they recommended an increase in the costs of policies for thousands of customers last year. The report by the Staple Inn Actuarial Society – a major organisation for UK insurers – details how it was able to use NHS data covering all hospital in-patient stays between 1997 and 2010 to track the medical histories of patients, identified by date of birth and postcode.

I don’t know if this use of my sensitive personal data (if it was indeed my personal data) was in compliance with the Data Protection Act 1998 (DPA), although sadly I suspect that it was, but section 42 of the DPA allows a data subject to request the Information Commissioner to make an assessment as to whether it is likely or unlikely that the processing has been or is being carried out in compliance with the provisions of the DPA. So that’s what I’ve done:

Hi

As a data subject with a number of hospital episodes over recent years I am disturbed to hear that the Hospital Episode Statistics (HES) of potentially 47 million patients were disclosed to Staple Inn Actuarial Society (SIAS), apparently for the purposes of helping insurance companies “refine” their premiums. I became aware of this through reports in the media (e.g. http://www.telegraph.co.uk/health/healthnews/10656893/Hospital-records-of-all-NHS-patients-sold-to-insurers.html). I am asking, pursuant to my right under section 42 of the Data Protection Act 1998, the ICO to assess whether various parts of this process were in compliance with the relevant data controllers’ obligations under the DPA:

1) I was not aware, until relatively recently, that HESs were provided to the HSCIC – was this disclosure by hospitals compliant with their DPA obligations?

2) Was the general processing (e.g. retention, manipulation, anonymisation, pseudonymisation) of this personal data compliant with HSCIC’s or, to the extent that HSCIC is a data processor to NHS England’s data controller, NHS England’s DPA obligations?

3) Was the disclosure of what appears to have been sensitive personal data (I note the broad definition of “personal data”, and your own guidance on anonymisation) to SIAS compliant with HSCIC’s (or NHS England’s) DPA obligations

4) Was SIAS’s subsequent processing of this sensitive personal data compliant with its DPA obligations?

You will appreciate that I do not have access to some information, so it may be that when I refer to HSCIC or NHS England or SIAS I should refer to predecessor organisations.

Please let me know if you need any further information to make this assessment.

with best wishes, Jon Baines

We’ve been told on a number of occasions recently that we shouldn’t be worried about our GP records being uploaded to HSCIC under the care.data initiative, because our hospital records have been used in this way for so long. Clare Gerada, former Chair of the Council of the Royal College of General Practitioners wrote in the BMJ that

for 25 years, hospital data have been handled securely with a suite of legal safeguards to protect confidentiality—the exact same safeguards that will continue to be applied when primary care data are added

Well, it seems to me that those legal safeguards might have failed to prevent (indeed, might have actively permitted) a breach involving 47 million records. I’m very interested to know what the Information Commissioner’s assessment will be.

UPDATE: 24 February 2014

An ICO spokesperson later said:

“We’re aware of this story, and will be gathering more information – specifically around whether the information had been anonymised – before deciding what action to take.”

UPDATE: 25 February 2014

At the Health Select Committee hearing into the care.data initiative HSCIC and NHS England representatives appeared not to know much about what data was disclosed, and in what circumstances, and effectively blamed NHSIC as a predecessor organisation. This echoed the statement from HSCIC the previous evening

The HSCIC believes greater scrutiny should have been applied by our predecessor body prior to an instance where data was shared with an actuarial society

UPDATE: 27 February 2014

GP and Clinical Lecturer Anne Marie Cunningham has an excellent post on what types of data were apparently disclosed by NHSIC (or HSCIC), and subsequently processed by, or on behalf, of SIAS. I would recommend reading the comments as well. It does seems to me that we may still be talking about pseudonymised personal data, which would mean that the relevant data controllers still had obligations under the DPA, and the ICO would have jurisdiction to investigate, and, if necessary, take regulatory action.

See also Tony Hirst’s blog posts on the subject . These are extremely complex issues, but, at a time when the future of the sharing and linking of health and other data is being hotly debated, and when the ICO is seeking feedback on its Anonymisation Code of Practice, they are profoundly important ones.

UPDATE: 14 March 2014

The ICO has kindly acknowledged receipt of my request for assessment, saying it has been passed to their health sector team for “further detailed consideration”.

UPDATE: 24 May 2014

Er, there is no real update. There was a slight hiccup, when the ICO told me it was not making an assessment because “[it] is already aware of this issue and is investigating them accordingly. Given that we do not necessarily require individual complaints to take consider taking further action your case is closed”. After I queried the legal basis for failing to make a section 42 assessment as requested, the position was “clarified”:

…we will make an assessment in relation to this case, however we are unable to do so at this present time…This is because the office is currently investigating whether, as alleged in the media, actual personal data has been shared by the HSCIC to various other organisations including Staple Inn, PA consulting and Google

I don’t criticise the ICO for taking its time to investigate: it involves a complicated assessment of whether the data disclosed was personal data. In a piece I wrote recently for the Society of Computers and Law I described the question of whether data is anonymous or not as a “profound debate”. And it is also highly complex. But what this delay, in assessing just one aspect of health data disclosure, does show, is that the arbitrary six-month delay to the implementation of care.data was never going to be sufficient to deal with all the issues, and sufficiently assure the public, and medical practitioners, to enable it to proceed. A vote on 23 May by the BMA’s Local Medical Committee’s conference emphatically illustrates this.

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care.data – what am I worried will happen?

I was invited today on twitter to say what I was worried will happen as a result of the care.data programme. I’ve written about this previously, and some of my concerns are laid out in those posts. But here’s a little list:

  • I am worried that even the most robust and secure data security measures can fail, or be overridden. Patients’ identifiable data could be compromised.
  • I am worried that there is a limit to how much users of the data could be restrained from making secondary, not-beneficial-to-patients, usage of data to which they are given access (Geraint Lewis, NHS Chief Data officer, was asked how, for instance, insurance companies would be prevented from doing this – he pointed to the Information Commissioner’s powers to impose Monetary Penalty Notices to a maximum of £500,000 for suitably serious contraventions of the Data Protection Act 1998. But a penalty for misuse of data will only be a net penalty if it outstrips profit from the usage.)
  • I am worried that some people will avoid seeking medical treatment, particularly for sensitive or serious ailments, if they in turn worry about who might have access to their data.
  • I am, in more general terms, worried about the lack of transparency that has surrounded the programme, and the lack of clear information. I am worried that, if the risks are so low and the benefits so high, why were initial attempts made to sneak this under the public’s radar?
  • I am worried that the amassing of and use of personal data in itself carries risks.
  • I am worried that I am wrong about all this, and that I am attacking a programme which will potentially deliver personal and societal benefits.

But, ultimately, I am not sure it is for me to say specifically what I am worried will happen. I don’t know specifically what will happen with a lot of things I worry about.

Surely it is for the proponents of care.data to say why I should be reassured. And I’m not.

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Why I’ve opted-out of care.data

Last week, after months of (over)thinking about it, I sent my GP a letter, based on the excellent template by the tireless MedConfidential refusing consent for identifiable data from my electronic medical records to be transferred to the Health and Social Care Information Centre (HSCIC).

I won’t rehearse the eloquent arguments against the current care.data proposals that you can read on MedConfidential’s site, and elsewhere (for instance GP Neil Bhatia’s excellent site). Nor will I rehearse arguments in favour. I have written about the subject in the past, and I don’t want to add to the general clamour. What I do want to say is why I have opted-out:

  • I’ve been struck by the inaccuracy and disingenuousness of the information which is being given to us in support of care.data. We are told, for instance, that “Your date of birth, full postcode, NHS Number and gender rather than your name will be used to link your records in a secure system, managed by the HSCIC. Once this information has been linked, a new record will be created. This new record will not contain information that identifies you”. This is cleverly worded: it does not say (because it would not be true) that this data will be anonymised, but it certainly tries to give that impression.
  • I have, ever since I first became aware of this issue, noted that there has been a lack of openness on the part of proponents. This has manifested itself in many ways, and people should be aware that the current leafleting campaign (as flawed as it is – note that it is not personally addressed to individuals, but simply sent to households, and doesn’t contain a form enabling people to opt-out) would not have come about were it not for concerns raised about this lack of openness.
  • I’ve noted the emotive campaign launched by leading charities in support of the campaign. But I’ve also noted the response by MedConfidential  which highlights that the charities’ campaign doesn’t draw attention to secondary usage of the information gathered, which could potentially be by pharmaceutical and other commerical companies, universities and other academic organisations, information intermediaries and think-tanks. On a general level, I do not think that amassing of personal data can ever be without potential risks and drawbacks, some of which include – the risk of breaches of data security, the risk of people failing to seek medical advice because of privacy fears, commercial use – and none of which are addressed in the charities’ campaign.
  • Finally, and, for me, crucially, if I fail to opt-out now, I’ve lost my chance – my data once uploaded cannot be deleted. However, opting out now does not preclude opting in in future. So, should I subsequently become convinced that societal and individual benefits from this amassing of electronic personal data outweigh my strong concerns about privacy and consent, I can change my mind in a way I couldn’t if I failed to opt out now.

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Filed under Confidentiality, Data Protection, data sharing, Privacy